The Second Annual “Raise the Roof for Rett” Will Help Raise Awareness and Funds for Rett Syndrome Patients at Children’s of Alabama
• Contact: Kathy Bowers 205/638-9002 (Kathy.bowers@childrensAL.org)
BIRMINGHAM (Oct. 15, 2013) – The SUKI Foundation will present the second annual “Raise the Roof for Rett” event on Friday, Nov. 1, 6-10 p.m. at LINC Point (101 Oslo Cir., Birmingham 35211) to help fund research and therapy programs for Rett syndrome patients at Children’s of Alabama.
The event will feature live music, dinner and dessert, complimentary drinks and a silent auction. Individual tickets are $50 in advance and $60 at the door. Sponsorship opportunities are also available for the event for $500 to $3,000. Tickets and sponsorship packages are available at http://SUKIfoundation.org/events.html. All proceeds will benefit SUKI Foundation in its efforts to raise awareness and funds for Rett syndrome research and programs at Children’s.
Sponsors include Full Moon Bar-B-Que, Slice Pizza and United Cerebral Palsy of Greater Birmingham.
Rett syndrome is a developmental disorder that occurs in one of every 10,000 female births across the world each year. Rett syndrome is caused by a gene mutation that creates problems with brain functions that are responsible for motor, sensory, emotional, cognitive and autonomic functioning. Those with Rett syndrome may have speech, movement, cardiac, learning or sensory issues that range in severity. Diagnosis usually occurs during infancy, between six and 18 months. With early detection, the lives of children diagnosed with Rett syndrome can be vastly improved.
The SUKI Foundation is a nonprofit organization that is dedicated to improving the lives of those affected with neurological disorders, such as Rett syndrome. The foundation is named after Sara Katherine Bateh, the daughter of the SUKI Foundation’s founders, Brian and Marie. Sara Katherine, nicknamed Suki, was diagnosed with Rett syndrome at the age of two. Funds from SUKI Foundation benefit Children’s of Alabama and are used to aid families in early detection and upon diagnosis of neurological disorders. It also provides support, education and therapeutic services through Early Learning Programs.
Children’s of Alabama has provided specialized medical care for ill and injured children since 1911, offering inpatient and outpatient services throughout central Alabama. Last year, families made more than 670,000 outpatient and nearly 14,000 inpatient visits to Children’s from every county in Alabama and from 41 other states and four foreign countries. With more than 2 million square feet, Children’s is the third largest pediatric medical facility in the U.S. and has been ranked among the top children’s hospital programs in the country for the past four years by US News & World Report. More information is available at http://www.childrensal.org.